Nicole Purcell lists having type 1 diabetes last when she's asked to provide information about herself - because that's where it belongs.
She is, first and foremost, a daughter, sister, aunt, partner, and friend and a professional fundraiser, writer, advocate, and clown. Diabetes is both incidental and central in her life - an afterthought that makes its way front and center more often than she'd like it to.
A native New Englander, Nicole lives in Somerset, MA with her longtime partner Bob and their cat Rosie. She has worked as a fundraising executive for various non-profit organizations since 1997 and keeps a blog at
CuriousGirl.
Nicole has recently taken on a side job in the world of parakeet training. She is training a parakeet named Louie to take her calls, deliver mail, and eat her beets. It's not going all that great.
How does it happen that life gets in the way of taking proper care of my diabetes?
How does it happen that I can log faithfully - bloodsugars, food, activity, dosing - for months - and then - poof! (or more like thud!) - I just fall off the wagon?
How?
Well. I guess real life happens.
Last spring, I rededicated myself to my health and well-being. I got into an exercise routine, I altered my eating habits, I committed to testing AND logging so that I could control my diabetes more effectively. And, on a whole, these efforts paid off. I lost about 50 lbs in a little over a year. I improved my A1C. I found myself with more energy and more stamina. I actually started enjoying eating well, packing a lunch and taking in ample servings of fruits and vegetables.
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I saw him from across the room. And edged closer.
Tall, white-haired, horn-rimmed glasses, a blue and white seersucker suit. Yes, seersucker. What can I say? It was a summer event on the water for the theater where I work - seersucker is always "in" amongst theater folks. But none of that caught my eye as much as the clear Medtronic Pump clipped to his grosgrain belt. I had to get closer. The pump, like a magnet, drew me.
"I noticed you're wearing an insulin pump," I said brightly, "I wear one too!" Popping my hip so that the outline of my pump showed a bit through the fabric of my dress.
"Oh, I'll just move out of the way - you guys are like a club." Said his wife "And don't forget to show her that other thing you have, Stan."
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This morning, getting ready for work. I looked at the scattering of dots on my thighs from old pump sites. And then I wrote this...
We test, we write it down - we test, we store results - we test, we examine results - we test, we make decisions about what to do next.
We eat, we calculate - we eat, we guess - we eat, we dose - we eat, we hold our breath and hope we've done everything right.
We take our medication, we adjust our doses - we take our medication, we wonder if it's the very best medicine for us - we take our medication, we hope that it serves our body well - we take our medication, and wait for the next big advance.
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I am snuggled safe in my bed, with my insulin pump tucked up against me, working just fine. I wish I was aware of this.
But I'm not.
I am in the living room of my Aunty Dot's house in Weymouth, MA. The purple seventies style shag carpeting growing up between my toes like grass. I am leaning on a plaid recliner. My brothers are there. We're kids. And we're with my dad. We're eating chinese food. Only my chinese food is pink. If I explained all of the things wrong with the above scenario (for example: my Aunty Dot has been gone a long time and she never actually had a shag carpet), the pink chinese food would seem perfectly fine. .
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I have finally decided to get my act together. I've had enough of yo-yoing bloodsugar. I've been lazy about my gym routine for long enough.
This week was a good start at getting back on track.
I tested my basal rates over the weekend and on Monday and found that I needed to make a minor adjustment or two. The new basal rates kicked ass on Tuesday and Wednesday and have been treating me well today. Step one - check.
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