Nicole Purcell lists having type 1 diabetes last when she's asked to provide information about herself - because that's where it belongs.
She is, first and foremost, a daughter, sister, aunt, partner, and friend and a professional fundraiser, writer, advocate, and clown. Diabetes is both incidental and central in her life - an afterthought that makes its way front and center more often than she'd like it to.
A native New Englander, Nicole lives in Somerset, MA with her longtime partner Bob and their cat Rosie. She has worked as a fundraising executive for various non-profit organizations since 1997 and keeps a blog at
CuriousGirl.
Nicole has recently taken on a side job in the world of parakeet training. She is training a parakeet named Louie to take her calls, deliver mail, and eat her beets. It's not going all that great.
This morning, getting ready for work. I looked at the scattering of dots on my thighs from old pump sites. And then I wrote this...
We test, we write it down - we test, we store results - we test, we examine results - we test, we make decisions about what to do next.
We eat, we calculate - we eat, we guess - we eat, we dose - we eat, we hold our breath and hope we've done everything right.
We take our medication, we adjust our doses - we take our medication, we wonder if it's the very best medicine for us - we take our medication, we hope that it serves our body well - we take our medication, and wait for the next big advance.
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I am snuggled safe in my bed, with my insulin pump tucked up against me, working just fine. I wish I was aware of this.
But I'm not.
I am in the living room of my Aunty Dot's house in Weymouth, MA. The purple seventies style shag carpeting growing up between my toes like grass. I am leaning on a plaid recliner. My brothers are there. We're kids. And we're with my dad. We're eating chinese food. Only my chinese food is pink. If I explained all of the things wrong with the above scenario (for example: my Aunty Dot has been gone a long time and she never actually had a shag carpet), the pink chinese food would seem perfectly fine. .
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I have finally decided to get my act together. I've had enough of yo-yoing bloodsugar. I've been lazy about my gym routine for long enough.
This week was a good start at getting back on track.
I tested my basal rates over the weekend and on Monday and found that I needed to make a minor adjustment or two. The new basal rates kicked ass on Tuesday and Wednesday and have been treating me well today. Step one - check.
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Ugh.
That is the perfect one word description of my diabetes management these days. I am off the rails. I am not on track. I am completely (or so it seems) - out of control. I see highs, I see lows, I see some in-range sugars - but mostly - not.
Today, for example. 68 mg/dl this morning. No breakfast, because I was too busy, just some Fuse Banana Colada juice. 119 mg/dl at around noon time. Salad. No test until 4pm. 4pm. And I've tested two times today. Then I'm 200 mg/dl... So what do I do? I have a carb heavy dinner and some ice cream. I am 236 mg/dl at 6:30 pm. I am 175 mg/dl now. Terrible. Terrible. Terrible. And not rare these days.
I haven't been to the gym at all this week. Work activities. Home searches... Other stuff that's - distracting.
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I am sometimes disappointed by the things my body can't do or by the things my does because of my diabetes. Like yesterday, when a downward cruising bloodsugar derailed my plans for a solid workout at the gym.
I was let down by my body's inability to stabilize.
I was let down by the fact that what has been working very well in terms of late afternoon/early evening basal dosing failed me.
And I was let down by the fact that even after juice and an early dinner of 40 carb grams with no bolus, I barely got thirty five minutes of exercise in before my rapidly dropping bloodsugar forced me to stop...
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